MedMaven

I have had 2 very rare cancers by 25 but no test comes back for any syndrome. Strong family history. How can I save myself and help research. They were carcinoid- appendix veriformis and DFSP

Dermatofibrosarcoma protuberans (DFSP) is a rare cancer in which tumors arise in the deeper layers of skin. The tumor usually starts as a small, firm patch of skin; it may be purplish, reddish, or flesh-colored. It is commonly found on the torso, usually in the shoulder and chest area. The tumor typically grows slowly but has a tendency to recur after being removed. It rarely spreads to other parts of the body. The cause of DFSP is unknown, but injury to the affected skin may be a predisposing factor. DFSP is associated with a re-arrangement of genetic material between chromosomes 17 and 22. It is the result of a new mutation that occurs in the body's cells after conception and is found only in the tumor cells. DFSP is not believed to be a hereditary condition.