Voices of Value Speak Up: Non-Small Cell Lung Cancer is the first part of a national six-event program presented by Patients Rising and Aimed Alliance.
Where is the patient in the national conversation about value and our healthcare?
It’s muted. – Join the Conversation
We believe patients need to not only join the conversation and understand the conversation, but help lead the conversation. It is only by determining the concerns and goals of the patient, that the true measure of value in our health care system can be found.
Come hear the problem, hear the patients, hear the experts — and in the end hear some alternatives to the current path. This special gathering will amplify the patient voice so it can be heard in the most important conversations addressing the emerging system of value frameworks.
Join our interactive conversation as patients are joined by advocates, doctors, economists and legal experts to define what value means to them. We believe these voices of value can make all the difference.
Co-Founder and Policy Director, Patients Rising
Jonathan leads the strategic and policy direction for Patients Rising, a non-profit advocacy organization that fights for access to vital therapies and services for patients with life-threatening and chronic diseases. Jonathan has been a featured on-air commentator for ABC News, NBC News, Fox News Channel, CNN, several national radio programs and international networks. His editorial commentaries have been featured in Investor’s Business Daily, National Review, Sacramento Bee, Los Angeles Daily News, San Francisco Chronicle, Washington Times, Houston Chronicle, Dallas Morning News and Cleveland Plain Dealer.
Confirmed Panelists and Guests:
CAR-T Cell Therapy - Advances in The Management of Multiple Myeloma
FDA Approves CAR T-cell therapy for multiple myeloma, ASH 2021 update.
FDA Grants Orphan Drug Designation to LYT-200 for Pancreatic Cancer and being evaluated in Cholangiocarcinoma
Pancreatic Cancer - Cholangiocarcinoma Clinical Trial
Jennifer Hinkel, MSc
Health Economist, Survivor, Patient Advocate
Jennifer Hinkel is a Partner at McGivney Global Advisors, strategic consultants to biotech, pharma, diagnostics and health IT companies. Diagnosed with Hodgkin’s Lymphoma in 1998 at the age of 17, she achieved a full remission after treatment with surgery and chemotherapy. Her cancer experience led to the creation of Resilience Racing, the first competitive sailing program specifically for cancer survivors. During the panel discussion Jennifer will share her views on the current debate over healthcare spending as both an economist and a cancer survivor.
Jeff was just 39 years old when he was first diagnosed, and never smoked a day in his life. During his time at USC, Julian was a member of the U.S. National Team, a silver medalist at the World University Games, a PAC-10 champion, a NCAA Silver Medalist, eight-time All American and an Olympic Trials finalist. Since 2004 he has been the Head Coach at Rose Bowl Aquatics. Today he is alive becuse of innovation. He joins us to share his story and his perspective on value.
Stacey L. Worthy, Esq.
Aimed Alliance, Director of Public Policy
Ms. Worthy manages advocacy and policy initiatives for Aimed Alliance, a non-profit organization that brings consumer, not-for-profit, government and industry leaders together to share information, set priorities, and collaborates toward mutual goals of improving health care through innovation. During the panel discussion, she will reveal why many of the obstacles to treatments from the insurance industry, as well as proposals to limit care based on cost-measures, are actually breaking the law.
Join the Conversation-Patient input is needed!
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